Operation over
Charlotte has had a very busy week, she went 10 days without dialysis, we were all set to believe the miracle we were waiting for had happened, her kidneys have recovered, but not enough............
We had the devastating news that she will need a kidney transplant, it could be in 15 yrs time, it could be in 6 months, but she will need it. Joe, Sophie and myself are looking at profiling to be donors.
We have been out and about, shopping in covent garden and the British museum with Sach and Darrel, lots and lots of charlottes freinds have visited, at one stage there were 5 extra bodies on her bed, the sister didn't see.
The operation today went well, Charlotte lost some more of her hand as the bone was dead underneath, the skin is very fagile and the blood supply is poor so we have to hope and pray for the best. There was a rogue bit of bone removed from her thumb and some black sponge from the vac dressing taken from her palm.
All tubes (nearly) have now been removed which will give charlotte the chance to get rid of her bugs once and for all, so she will be able to mix with other patients and used shared spaces
We had the devastating news that she will need a kidney transplant, it could be in 15 yrs time, it could be in 6 months, but she will need it. Joe, Sophie and myself are looking at profiling to be donors.
We have been out and about, shopping in covent garden and the British museum with Sach and Darrel, lots and lots of charlottes freinds have visited, at one stage there were 5 extra bodies on her bed, the sister didn't see.
The operation today went well, Charlotte lost some more of her hand as the bone was dead underneath, the skin is very fagile and the blood supply is poor so we have to hope and pray for the best. There was a rogue bit of bone removed from her thumb and some black sponge from the vac dressing taken from her palm.
All tubes (nearly) have now been removed which will give charlotte the chance to get rid of her bugs once and for all, so she will be able to mix with other patients and used shared spaces
Labels: update
posted by Charlotte Robinson at 6:46 AM
8 Comments:
hey charlotte good to c that u r geting better lets hope you get that kidney soon well i will c u soon ok take care love emma powell n gemma nakita xxxxxxxxxxxx
Hi Charlotte My name is Shailu, I work with your mum in Harrow and was also one of the people who aranged the fundraiser BBQ in Harrow. I am so pleased to see yo doing so well and also my daughter Nikita has always follwed your progress, I hope you get a kidney soon, but am very sure that your mum is very proud because you so strong. Take care and I'm sure Nikita will be posting a message soon as she is very interested in you doign so well.
Darling Charlotte, This is Helen (Sister Helen from Broomfield) have not been on for a while, glad to see u have come along so well, hope u get your kidney situation sorted out soon, will keep my fingers crossed. Will be thinking of u, sending lots of hugs and kisses your way
love HELEN
ps Send my love to Jayne, Sophie & Rachel.
Dear Charlotte,
Perhaps you will remember me from Coleridge, Becky, Gus' mum. I visited your web site today and was astonished at your bravery. You were always a special person and now it really shows. Gus, Archie and I are all thinking of you and send our love.
Becky, Gus and Archie xxx
Hey Charlotte,
Its Nurse Paula here, I looked after you today on Sky ward....You are a star patient, and so brave! Your website is great, and its so nice to see so many people fundraising for you and supporting you and your family. You are such a strong person,and are doing so well, considering everything you have been thru.
Hold your head up high, keep smiling!
Ill be checking how your doin thru your website. Hopefully ill be working in GOS soon!!
Lots of love, Paula XxX
(Im still jealous u met Lemar!)
hey charlotte,
me Shaz and Anne had a lovely day with you last Friday you are brill company .My boss has named me and Shaz 'Thelma and Louise' since it took us two days to get to you from Sheffield! Nobody up here can beleive it! Sorry you didn't get your Mcdonalds Breakfast.
I didn't realise you had bad news about your kidney Charlotte, yet another mountain to climb, but i think you are quite an expert now and you have so much support to help you on your way. it's really inspirational reading this blog, you of course have faced up to all your problems with such grace and bravery, but also you have inspired such warmth and incredible support from so many people.
I am gradually arranging the Boxing Day walk, have worked most days since i got back but will email your mum some details probably thursday my next day off.
Are you still on schedule to leave on the 18th, i so hope so, i am counting the days with you
lots of love
claire
xxxxxxxxxx
Hi
Charlotte, not good news about kidneys, another hurdle but if anyone can get through it you can. Have another night coming up in March time with local bands hope you liked the photos of the night your Dad showed you it was a great success, both of us were very nervous on the night as we never done anything like that before plus it was for you so made it so important but it went great we won’t be as nervous for the next one, also got a 10 mile walk organised called ‘The Purple Butterfly Walk’ end of April along the coast of Sunderland, tried to walk half of it the other day might have to lay off the mince pies I was shattered!! Your Dad keeps us all posted on how you are doing
All the best Charlotte
Lesley-Ann
Sunderland
hey charlotte itz sunny, from pva miss u bareeeeeeeeeeeeeeeeeeeeeeee so duz every1 eles in p.v.a hopin u visit u sooooon until then hang tightttt luv u loadzzz xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
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