Brilliant News
I am taking over updating the blog (jayne) as Sophie is very restricted at UNI and this way means Charlotte can have a bigger input as she is so much better.
The weekend has been horrid and Charlotte was not well at all, I am glad to say she is much better now.
The brilliant news is that when Charlotte went for dialysis this week she did not have to have any fluid removed, as her body is regulating its own fluid balance. The kidneys are not cleaning the blood as well as she needs it to, but that has also improved. This means there is a good chance of a future without dialysis, everyone keep their fingers crossed and those people who have been praying for her please don't stop yet, we all believe it is making a big difference.
Charlotte is missing the good friends she made at Broomfeild and is over the moon Kerry is coming this week so she can get the gossip.
PICU nurses have been dropping in to visit, and Lois the play specialist who is a big favorite with Charlotte has helped ease the transition.
Sky ward is lovely, Charlotte has views of Nelson's column, centre point and a whole roof top skyline, I will take photos tomorrow. We are on the 6th floor and the ward has only been open for 6 months. Charlotte has her own room and is still not able to mix with other patients because of her bugs, but the room is large bright and airy with her own bathroom, very much 5**
There is a lot to do here, Charlotte has already won a competition with a word search on radio lollipop and is having her music played. The internet connection is up and running so she can see the comments on the blog, so please everyone have a go and leave her a message. If anyone wants to visit please phone her, she is managing her own social diary and would welcome visitors, she just can't really tell if she will be ok on the day so its possible you may come and she will be sleeping.
The best time would be after 4pm as the rest of her day is pretty full. Weekends are very laid back and we may be able to escape with you.
We are all working on a weekly program which I will put on here this week which will make planning visiting easier.
physio is twice a day, 11.30 and 3.30 for an hour each, they have been amazed at how strong she is and have given her weights to increase her muscles, Charlotte is aiming for a 6 pack.
We are making lots of plans at the moment, Charlotte will be 15yrs old on the 8th December so we are discussing birthday outings all ideas are welcome.
All in all she is doing well and is so much better, thankyou all for your support
love jayne and Charlotte
The weekend has been horrid and Charlotte was not well at all, I am glad to say she is much better now.
The brilliant news is that when Charlotte went for dialysis this week she did not have to have any fluid removed, as her body is regulating its own fluid balance. The kidneys are not cleaning the blood as well as she needs it to, but that has also improved. This means there is a good chance of a future without dialysis, everyone keep their fingers crossed and those people who have been praying for her please don't stop yet, we all believe it is making a big difference.
Charlotte is missing the good friends she made at Broomfeild and is over the moon Kerry is coming this week so she can get the gossip.
PICU nurses have been dropping in to visit, and Lois the play specialist who is a big favorite with Charlotte has helped ease the transition.
Sky ward is lovely, Charlotte has views of Nelson's column, centre point and a whole roof top skyline, I will take photos tomorrow. We are on the 6th floor and the ward has only been open for 6 months. Charlotte has her own room and is still not able to mix with other patients because of her bugs, but the room is large bright and airy with her own bathroom, very much 5**
There is a lot to do here, Charlotte has already won a competition with a word search on radio lollipop and is having her music played. The internet connection is up and running so she can see the comments on the blog, so please everyone have a go and leave her a message. If anyone wants to visit please phone her, she is managing her own social diary and would welcome visitors, she just can't really tell if she will be ok on the day so its possible you may come and she will be sleeping.
The best time would be after 4pm as the rest of her day is pretty full. Weekends are very laid back and we may be able to escape with you.
We are all working on a weekly program which I will put on here this week which will make planning visiting easier.
physio is twice a day, 11.30 and 3.30 for an hour each, they have been amazed at how strong she is and have given her weights to increase her muscles, Charlotte is aiming for a 6 pack.
We are making lots of plans at the moment, Charlotte will be 15yrs old on the 8th December so we are discussing birthday outings all ideas are welcome.
All in all she is doing well and is so much better, thankyou all for your support
love jayne and Charlotte
posted by Charlotte Robinson at 11:15 AM
2 Comments:
Hello Sweetie,
It's so good to hear you're doing so well! You are one strong and tenacious girl. I really want to come down to see you but funds are very tight for me at the moment so a visit will probably have to wait until after Christmas.
I'm busy organising a sponsored walk in York at the moment to raise money for your trust, it should be fun and it's on the 9th December so it will be like an extra birthday present I thought. I'll take lots of pictures.
You're so strong honey! I'm really pleased to hear you're doing all your exercises and stuff, that's the way to speed up getting home! It sounds like you've got a lovely room at Great Ormond Street, good that you're getting the luxury you deserve for all your resilience.
I think about you all the time sweetie and send my strength to you for the fastest recovery possible. So many of my friends think you are amazing (as I do of course :-)). Keep up the good work honey! Loads of love and big, huge hugs Eli x x x
PS. Jayne if you have the time or energy to encourage people you know in York to get involved with the walk it'd be great. x x x
hey charlotte,
im glad to hear you're doing sooo well!! i got a present for you 2dy, a friend made it it's a real whitby thing! im not sure if you already have one or not but still i'll send it down with nana next tiem she goes to see you. im going to try and come down to see you soon if that's ok? me n mum r thinkin bout having a day trip to london so i'll let you know when.keep doing your exercises, all my love abs xxxxxxxxxx
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