Out Of Intensive Care AT LAST

Charlotte has now been moved to the Sky Ward in the new and fancy part of Great Ormond Street! She moved here on Thursday but hasn't been feeling too great. She has developed a urine infection and has acute constipation and bladder spasms caused by the urine infcetion which is, all together, causing her intense pain. She is unable to have adequate pain killers as they would either make her constipation worse, or cause problems for her renal failure. So she having to cope with it, which is hard!she has been screaming in pain with the spasms all day friday and saturday, she wasn't coping and we had to call mum and Rachel back from Paris on sat morning. Its sunday now and they have given her medicine to relax her and found some pain killers that are helping.She is really having a very hard time at the moment and its difficult for us all to see and hear in so much pain, it seems so unfair, she has sufered enough.

She hasnt eaten a meal for over a week and hasn't even been able to hold down water since Thursday, she isn't having any nasogastric feed, so ontop of everything she is also feeling faint and weak because of this.

Hopefully this will be sorted by mid-week next week. At the moment she goes for dialysis 3 times a week and her bladder seems to be producing fair amounts of good urine. So there are high hopes for her not needing long-term dialysis or a kidney transplant (fingers crossed)