Peter Pan

Charlotte has recovered brilliantly after such an awful weekend, Dialysis was done Tuesday and Friday, but the fluid balance is still being effectively managed by Charlotte, its mainly raised phosphates that are causing a problem, and drugs have been started with the hope that these can eliminate the need for dialysis, I really hope so, keep your fingers crossed.

One major first today was a bath, they have a funky bath that really allows a good wallow, we couldn't get Charlotte out until she was very crinkly.
Another first was Charlotte sitting up herself and staying sitting up, her physio's have great fun playing volley ball with Charlotte, excellent for the abdo muscles.

Daniel came to interview Charlotte from the Hounslow Chronical, they did a piece when Charlotte was first ill to support her and another on the walk that Brentford School did to raise money for Charlotte's trust, It was very emotional for both of us to go through the story and for Charlotte to talk about her legs.

GOS brought us tickets for peter pan on ice in crystal palace, we went by black cab, which was great and had us both planning other outings around London now the possibilities were opened, he threw us out miles from the entrance and we got stuck with loads of stairs, so many people helped, Peter pan was brilliant, but Charlotte felt a bit ill so we left early, we had brilliant ambulance men, who got us home in half of the time of the black cab.

Rachel Charlotte and I have just got back from Pizza hut, totally stuffed and settling down to watch a film.
Charlotte and I are looking forward to a haircut tomorrow, look out for the photos.