Neeeoooos
Hello everyone,
Charlotte has had a rough week. She has been hot and flushed with pain all over and severe headaches. BUT her wounds have been healing really well! Areas that have been debrided and looked as though they would never heal, are now looking fantastic!
Yesterday charlotte had a 'trial run' of being nursed on her stomach. It didn't go well. According to mum she screamed non-stop for 6 hours in pain, probably caused mainly by her collostomy, but also because of how weak she is and because she has been lying on her back for the last 14 weeks.
After alot of fighting and shouting, charlotte eventually realised that in was in her best interests to try her hardest to really give lying on her stomach a go. So she has promised to try, starting from tomorrow. There is only one condition: mum is not allowed to leave her side the whole time she is on her stomach!i'm allowed to take over the the 'mum' duties this weekend, but other than that mum has been forced to give up her 3 half hour breaks a day and invest in a coffee flask and a packed lunch box!
Charlotte is having her final skin grafting operation tomorrow!! We are all very excited at the thought of this stage of Charlotte's recovery almost being over. Once her skin is grafted all over she will stand a much lower chance of contracting any scary bugs and will 'fill out' and so hopefully, start to be able to move around more and eventually, we can take her out in a wheel chair somewhere beautiful! Although, unfortunately by then it will be autumn and probably rainy.
There is a slight concern at the moment as charlotte is complaining of frequent headaches and seems to be sleeping an awful lot. Sometimes it is very difficult to wake her, which is worrying the doctors and they want to perform an MRI scan just to check what's going on 'up there'. There is talk of having to take her to Great Ormond street to do this, but this hasn't been confirmed yet. She is not really well enough yet to be moved.
Below are a few more pics from the Harrow night, enjoy!!
Sophie
x X x
Charlotte has had a rough week. She has been hot and flushed with pain all over and severe headaches. BUT her wounds have been healing really well! Areas that have been debrided and looked as though they would never heal, are now looking fantastic!
Yesterday charlotte had a 'trial run' of being nursed on her stomach. It didn't go well. According to mum she screamed non-stop for 6 hours in pain, probably caused mainly by her collostomy, but also because of how weak she is and because she has been lying on her back for the last 14 weeks.
After alot of fighting and shouting, charlotte eventually realised that in was in her best interests to try her hardest to really give lying on her stomach a go. So she has promised to try, starting from tomorrow. There is only one condition: mum is not allowed to leave her side the whole time she is on her stomach!i'm allowed to take over the the 'mum' duties this weekend, but other than that mum has been forced to give up her 3 half hour breaks a day and invest in a coffee flask and a packed lunch box!
Charlotte is having her final skin grafting operation tomorrow!! We are all very excited at the thought of this stage of Charlotte's recovery almost being over. Once her skin is grafted all over she will stand a much lower chance of contracting any scary bugs and will 'fill out' and so hopefully, start to be able to move around more and eventually, we can take her out in a wheel chair somewhere beautiful! Although, unfortunately by then it will be autumn and probably rainy.
There is a slight concern at the moment as charlotte is complaining of frequent headaches and seems to be sleeping an awful lot. Sometimes it is very difficult to wake her, which is worrying the doctors and they want to perform an MRI scan just to check what's going on 'up there'. There is talk of having to take her to Great Ormond street to do this, but this hasn't been confirmed yet. She is not really well enough yet to be moved.
Below are a few more pics from the Harrow night, enjoy!!
Sophie
x X x
posted by Charlotte Robinson at 1:16 AM
1 Comments:
Hey Sweetiepie,
Sorry to hear you've had another difficult week. I wish I could be there to see how you're doing for myself. Sounds like you're healing SO well though darling and that is because you are so strong! I am in awe of your courage and fight, keep that feistiness up!
Having to be nursed on your stomach sounds so horrid for you but if it helps you to heal faster then it's worth it. Just keep looking to the future, it will come quicker than you think and you'll be able to get outside and feel the fresh air on your face.
Sending you all my love, strength and prayers, always, Eli x x x
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