Monday, September 04, 2006

Thank You! everyone who came to or participated in the fundraising event in Harrow last saturday!

We raised £1700 at yet another fantastic charity event which was held in Kodak sports ground in Harrow. We would like to say a special thanks to Shailhu for organising the event which included a delicious BBQ, a live performance from Austin Boss, a raffle and auction where people won prizes such as a digital camera, a playstation, and swingball!! (i was GREEN with envy!) and finally a fun-loving DJ to take us into the late hours of the evening. It was brilliant, and we really were grateful to those who came along and showed their support to all of us. Thank you :)



James, Rachel, Steven, Sophie and friend!



Bernice Philips and her grandson, with Abigail, who stole the limelight with a beautiful rendition of both Baa Baa Black Sheep and a song about a horse!



April Marshall and her daughter Crystal

Charlotte is doing well. I went to see her for the day yesterday and caught up a bit on the details of how she is doing. She was bright, lively and sarcastic! Which we love to see! Don't know if the hospital staff appreciate her sarcasm though! Now more than ever it is important for Charlotte to be doing her exercises with her physio thoroughly. She still has fluid in her lungs, but also still has intense nausea, and so finds it very difficult to do the breathing exercises as the large breaths make her feel sick. Being on the haemofiltration has greatly improved her lung function and her O2 saturation levels are much higher and much more constant as it forces the fluid from her lungs, back to where it should be. Charlotte was able to have a break from the Oxygen mask and nose 'prongs' for a while yesterday for a good couple of hours before her levels started to dip a bit.

There are many after effects of being so critically ill. Charlotte has severe weakness in her muscles, especially her fingers and arms and is having to to do exercises as often as she can to try and strengthen these muscles. At the moment she cannot straighten her fingers or make a fist tight enough to hold a pen. She has started trying to hold her own cups and can almost brush her own teeth. I think this kind of independance will be especially good for her morale and determination. Hopefully these little triumphs will give her some satisfaction and motivation.

Unfortunately, as i noticed yesterday, she appears to be losing small amounts of hair. There is no telling how much she will lose, at the moment it is hardly noticeable, and will definitely grow back. This again, we have been told, is a by-product of being hospitalised for such a long time.

Yesterday i read her the messages people had sent her last week and it made her smile. Giving her some way of bringing her mind out of the hospital gives her a break the monotony, and hopefully soon we can get her laptop up and running and she can message you all back. When this happens we'll create an email account for anyone who wishes to talk to her. How exciting!

Hope you all had a lovely weekend, thanks again to everyone who contributed on Saturday!

Sophie x X x

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