Over the weekend...

Thanks to everyone who left comments on this page. I am so happy to see that people think this blog is a good idea :) I am going to print all comments left for Charlotte and send them to her every week so she can see how much support she has. If you want to send a meesage that will go directly to Charlotte remember you can also write an email to sophie@charlotterobinson.org and i will forward on any messages to her. When she starts to get better she will also be able to reply!

I wasn't really sure how to write this blog in a way that would be easy to read and informative enough without being too lengthy (because trust me, i could make it lengthy). So i've decided to write in any information that I would find interesting should i be in a readers position.

I stayed with Charlotte from Thursday, mid-day until Sunday mid-day. When i arrived she had just returned from her shower and was shivering and cold with all her teddies snuggled in around her. She is having showers (where they clean Charlotte's wounds on her legs, hips and back) every other day as the pseudomonas bug that caused her septicaemia outbreak a few weeks ago, is still present in her wounds. This means that Charlotte is still 'on the tight-rope', at the risk of developing septicaemia again. However, she has been fighting it for long enough now for us to be able to say that she is building up some resistance to it and the bug is staying in her wounds and not entering her blood.

She warmed up slowly but was very sleepy for the rest of the day and only woke up in stops and starts to ask me to sponge her down with icy water. Even though her temperature is not increasing (she has been a stable 37.0/37.1 all weekend) she keeps getting hot flushes which the doctors think is linked to her constant nausea. The poor thing has intense nausea day in and day out and is sick every 4 or 5 hours.

Friday was pretty much the same except she started to complain of stomach pain. This pain made breathing very difficult and she started to breathe quicker and more shallow. The doctors have um-ed and ar-ed and now think that she may have gall stones. Not very pleasant for her. This isn't definite yet though, i will let you know as soon as we know.

On Saturday she had a 'relaxing' day where she had no shower or sheet change and was left alone in terms of being tampered with by doctors and nurses. Whereas Thursday and Friday she was sleepy and appearing very down and apathetic, on Saturday she seemed to perk up a little and while watching 'Bruce Almighty' she even managed a few smiles! It's been so long since i've seen any sparkle in her eye i could have cried with happiness!

I haven't seen her wounds for some time, but the doctors tell us that although her back is doing much better, her bottom is not so great and the wounds are very deep. We don't know what this means for her long term recovery yet, we just have to wait and see and hope that she heals better.

Not much to report this weekend, i hope this is the kind of information that will help you feel a little more in touch with what is going on, as i know it's hard when you're not here as you feel so far away.

I hope you are all well, and if you have any suggestions on how to make this blog more informative for you, just let me know

Love to you all, Sophie x X x